{"id":1050,"date":"2022-11-02T11:03:58","date_gmt":"2022-11-02T11:03:58","guid":{"rendered":"https:\/\/www.wellahealth.com\/blog\/?p=1050"},"modified":"2022-11-07T09:44:56","modified_gmt":"2022-11-07T09:44:56","slug":"sickle-cell-anemia","status":"publish","type":"post","link":"https:\/\/www.wellahealth.com\/blog\/sickle-cell-anemia\/","title":{"rendered":"Why is Sickle Cell Anemia Common in Nigeria"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">&#8220;At a very young age, my parents were encouraged by others to let me die because I was not a perfect child, I was a child with sickle cell anemia. My father left his job and stayed home to take care of me for about 2 years, then my mother did the same for another 2 years. Each summer, I was sent to the United States for treatment and rest while my senior brother took great care of me. I was one of the lucky ones&#8217; &#8216; &#8211; this is Julia Aruya&#8217;s story, a sickle cell warrior, as shared on the Sickle Cell information center, a 37-year-old Nigerian. She went ahead to discuss how difficult it was for her to associate and operate effectively in her workplace. She had been through years of mental anguish as a result of stigmatization from her environment.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">This story of Julia is also the story of another 4-6 million Nigerians living with sickle cell anemia.\u00a0<\/span><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-1053 aligncenter\" src=\"\/blog\/wp-content\/uploads\/2022\/11\/THE-TRUTH-ABOUT-HYPERTENSION-2-300x158.png\" alt=\"\" width=\"511\" height=\"269\" srcset=\"\/blog\/wp-content\/uploads\/2022\/11\/THE-TRUTH-ABOUT-HYPERTENSION-2-300x158.png 300w, \/blog\/wp-content\/uploads\/2022\/11\/THE-TRUTH-ABOUT-HYPERTENSION-2-1024x538.png 1024w, \/blog\/wp-content\/uploads\/2022\/11\/THE-TRUTH-ABOUT-HYPERTENSION-2-768x403.png 768w, \/blog\/wp-content\/uploads\/2022\/11\/THE-TRUTH-ABOUT-HYPERTENSION-2.png 1200w\" sizes=\"auto, (max-width: 511px) 100vw, 511px\" \/><\/p>\n<h2><b>Why is sickle cell <\/b><b>anemia <\/b><b>common in Nigeria?<\/b><span style=\"font-weight: 400;\">\u00a0<\/span><\/h2>\n<p><span style=\"font-weight: 400;\">Nigeria has the highest burden of Sickle Cell Disease (SCD) in the world and is also the top sickle cell endemic country in Africa, with an annual infant death of about 150,000 representing more than eight percent (8%) of infant mortality in the country.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">About 50 million people are living with sickle cell disease globally and Nigeria is the epicenter zone with about 4-6 million people living with the disease (1 in every 4 Nigerians has a sickle cell trait). Annually about 300,000 newly diagnosed sickle cell children are born worldwide. And at least 100,000 babies die from the disorder in Nigeria every year according to 2014 statistics by the <a href=\"https:\/\/www.premiumtimesng.com\/health\/health-news\/273006-world-sickle-cell-day-why-disease-remains-endemic-in-nigeria.html#:~:text=At%20least%20100%2C000%20babies%20die,cell%20endemic%20country%20in%20Africa.\">World Health Organisation (WHO)<\/a>, making it the number one sickle-cell endemic country in Africa.<\/span><\/p>\n<h2><b>Sickle Cell is endemic in Nigeria\u00a0<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">The negativity that comes from Nigeria as a result of having sickle cell can kill you emotionally. It is believed that you are disabled already if you have sickle cell, you have got a deadly disease and nobody marries a sickler. Nigerian society lacks these three (3) things;\u00a0<\/span><\/p>\n<ol>\n<li><span style=\"font-weight: 400;\">Lack of awareness\u00a0<\/span><\/li>\n<li><span style=\"font-weight: 400;\">Empathy and understanding for sickle cell warriors and the situation explains why they are still being \u2018discriminated\u2019 against.<\/span><\/li>\n<li><span style=\"font-weight: 400;\">Adequate health facilities for treatments. Hence, why most people send their sickle cell children abroad to get treatment. But, what happens when it&#8217;s not someone who can afford that?<\/span><\/li>\n<\/ol>\n<p><span style=\"font-weight: 400;\">Society has close to zero awareness policies. Couples don\u2019t do thorough medical checkups before getting married. People are being stigmatized because there is no proper understanding of what sickle cell anemia is. The stigma is that if you have got sickle cell, they have already put a death sentence on you, or you are a child of evil. They always have that look of pity.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Sickle cell warriors also lack adequate information on how to take care of themselves to, at least, reduce the impact of the disorder on their well-being. There needs to be an understanding of what sickle cell is all about and this knowledge should be spread across various societies.\u00a0<\/span><\/p>\n<h2><b>Meaning\u00a0<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">Sickle cell anemia disease is an inherited blood disorder marked by defective hemoglobin. It inhibits the ability of hemoglobin in red blood cells to carry oxygen. Sickle cells tend to stick together, blocking small blood vessels and causing painful and damaging complications. Sickle cell anemia is a form of anemia \u2014 a condition in which there are not enough healthy red blood cells to transport adequate oxygen throughout the body. Hemoglobin is the protein in red blood cells that carries oxygen to the tissues of the body.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">So, sickle cell disease interferes with the delivery of oxygen to the tissues. Normal red blood cells can live up to 120 days. But, sickle cells only live for about 10 to 20 days.<\/span><\/p>\n<h2><b>What causes Sickle cell disease?<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">This is an inherited disease caused by defects in the gene. A person can be born with it if he\/she inherits two sickle cell genes, one from the father, and the other from the mother. Having a family history of sickle cell disease increases your risk for the disease.\u00a0<\/span><\/p>\n<h2><b>Symptoms and signs<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">Here are the symptoms and complications associated with sickle cell disease. However, each person may experience symptoms differently. Such symptoms include<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Anemia<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Pain crises of sickle crisis<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Acute chest syndrome<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Splenic sequestration (pooling)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Stroke<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Jaundice, or yellowing of the skin, eyes, and mouth<\/span><\/li>\n<\/ul>\n<h2><b>Diagnosis\u00a0<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">Hemoglobin electrophoresis is a blood test that can determine if a person is a carrier of sickle cell anemia, or has any of the diseases associated with the sickle cell gene.<\/span><\/p>\n<p><b>Challenges faced by sickle cell patients in<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Children with sickle cell can get a stroke \u2013 which could be fatal and which could leave them paralyzed for life.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">People with sickle cell sometimes suffer a breakdown or degeneration of the hip joint\/bones and end up unable to walk.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Ineffective\u00a0 emergency access to quality healthcare which results in complications<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Persons with sickle cell tend to suffer extensive, chronic leg ulcers or sores that cause them much debilitation and social isolation.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Socially, they suffer stigma and discrimination.<\/span>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"2\"><span style=\"font-weight: 400;\">From workplace\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"2\"><span style=\"font-weight: 400;\">From family\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"2\"><span style=\"font-weight: 400;\">For school\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"2\"><span style=\"font-weight: 400;\">From society\u00a0<\/span><\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">Bone Marrow Transplantation (BMT) is a cure for sickle cell, but it is not widely accessible and not everyone with sickle cell is a suitable candidate<\/span><\/p>\n<h2><b>Indicators of an emergency situation<\/b><span style=\"font-weight: 400;\">\u00a0<\/span><\/h2>\n<p><span style=\"font-weight: 400;\">Patients and families should watch for the following conditions that need urgent medical evaluation:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Fever of 101\u00b0 F or higher<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Chest pain<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Shortness of breath<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Increasing tiredness<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Abdominal swelling<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Unusual headache<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Any sudden weakness or loss of feeling<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Pain that will not go away with home treatment<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Priapism (a painful erection that will not go down)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Sudden vision change<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Increased infection\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Leg ulcers<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Bone damage\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Early gallstones<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Kidney damage and loss of body water in the urine<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Eye damage\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Multiple organ failure<\/span><\/li>\n<\/ul>\n<h2><b>Tips for managing and living with sickle cell disease in Nigeria<\/b><span style=\"font-weight: 400;\">\u00a0<\/span><\/h2>\n<p><span style=\"font-weight: 400;\">Sickle cell anemia disease is a life-long condition. Although the complications of sickle cell disease may not be able to be prevented entirely, when you look out for the following, you will beat it more than you can imagine.<\/span><\/p>\n<ul>\n<li><span style=\"font-weight: 400;\">Healthy diet<\/span><\/li>\n<\/ul>\n<p>Living a healthy lifestyle can reduce some of the complications. It is important to eat a healthy diet with lots of fruits, vegetables, whole grains, and protein, and <b>drink lots of fluids<\/b>.<\/p>\n<ul>\n<li><span style=\"font-weight: 400;\">Vaccination and antibiotics for the prevention and treatment of infections <\/span><\/li>\n<\/ul>\n<p>Avoid infections by getting an annual flu shot, washing your hands frequently, avoiding those who are sick, and getting regular dental exams.<\/p>\n<ul>\n<li>Have a standby doctor<\/li>\n<\/ul>\n<p>It is important to have a doctor you can always reach out to and ask questions. Make sure you register with a health platform that can give you access to consultation 24\/7. Folic Acid supplementation, Pain medication, and some other therapeutic measure.<\/p>\n<ul>\n<li><span style=\"font-weight: 400;\">Have a standby pharmacy where you can get drug<\/span><\/li>\n<\/ul>\n<p>Routine drugs like L-glutamine oral powder (Endari), Crizanlizumab (Adakveo), Voxelotor (Oxbryta), and pain-relieving medications, need to be easily accessible. You should always have the number of a pharmacy where you can order original medications, especially in emergency situations. <a href=\"https:\/\/www.wellahealth.com\/ChronicCare\/Home\">Wellahealth<\/a> has an online pharmacy that offers 24\/7 chronic care.<\/p>\n<ul>\n<li><span style=\"font-weight: 400;\">Have health insurance <\/span><\/li>\n<\/ul>\n<p>This is for cases where you don&#8217;t have disposable cash. You can\u2019t put your health on hold because you don\u2019t have money at the moment. Register with companies that offer health insurance, for example, WellaHealth <a href=\"https:\/\/www.wellahealth.com\/\">Micro Insurance packages<\/a> with Stanbic IBTC At Ease Wallet.<\/p>\n<ul>\n<li><span style=\"font-weight: 400;\">Always have someone you can call<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">This can be family members, friends, church members, or someone in your street or compound. Just make sure you have someone\u2019s number you can reach out to in times of emergencies.<\/span><\/p>\n<h2><b>Next step<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">Nigeria needs to work more on tackling the awareness issues in society and building more policies that will help sickle cell patients. Sickle cell disease always comes with its own baggage of other diseases, so much attention needs to be given to patients with sickle cell. Wellahealth has built a health platform that will help people with this <\/span><a href=\"https:\/\/www.wellahealth.com\/ChronicCare#\/\"><span style=\"font-weight: 400;\">chronic condition<\/span><\/a><span style=\"font-weight: 400;\">. You are advised to always sort for information.\u00a0\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"&#8220;At a very young age, my parents were encouraged by others to let me die because I was&hellip;\n","protected":false},"author":1,"featured_media":1065,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[69],"tags":[78],"class_list":{"0":"post-1050","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-chronic-care-managment","8":"tag-sickle-cell-anemia"},"_links":{"self":[{"href":"https:\/\/www.wellahealth.com\/blog\/wp-json\/wp\/v2\/posts\/1050","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.wellahealth.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.wellahealth.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.wellahealth.com\/blog\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.wellahealth.com\/blog\/wp-json\/wp\/v2\/comments?post=1050"}],"version-history":[{"count":3,"href":"https:\/\/www.wellahealth.com\/blog\/wp-json\/wp\/v2\/posts\/1050\/revisions"}],"predecessor-version":[{"id":1055,"href":"https:\/\/www.wellahealth.com\/blog\/wp-json\/wp\/v2\/posts\/1050\/revisions\/1055"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.wellahealth.com\/blog\/wp-json\/wp\/v2\/media\/1065"}],"wp:attachment":[{"href":"https:\/\/www.wellahealth.com\/blog\/wp-json\/wp\/v2\/media?parent=1050"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.wellahealth.com\/blog\/wp-json\/wp\/v2\/categories?post=1050"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.wellahealth.com\/blog\/wp-json\/wp\/v2\/tags?post=1050"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}